- Ehlers Danlos
- Interviews
Joanne's interview
How did all start?
I was born
Do you already have a diagnosis? How long did it take you to get it?
Got diagnosed recently, only a couple of weeks once I heard about eds
What has been the most useful thing for you so far?
Cannabis and mindfulness
What have been your biggest difficulties?
Trying to keep up with others
How has your social and family environment reacted? Have your social or family relationships changed?
It hasn't really they always knew I was different
What things have you stopped doing?
Nothing that I really wanted to do
What do you think about the future?
Very hopeful
So far, which years have been the best years in your life? What have you done during them?
Recently, holidays, flying , hiking , loving life
What would you like to do if you didn’t have your condition?
Work full time
If you had to describe your life in a sentence, what would it be?
Mostly happy doing want I can
Finally, what advice would you give to a person in a similar situation?
Music friends food and fun , pets and love and more musci
