joined@thehip's interview
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Do you already have a diagnosis? How long did it take you to get it?
Yes, I have diagnoses.
What have been your biggest difficulties?
Finding the right climate to serve the needs of my temperature regulation disorder and going almost 40 years without health insurance and almost no healthcare. I'm grateful for the access I now have to healthcare for my multi-systemic conditions.
How has your social and family environment reacted? Have your social or family relationships changed?
I am more isolated due to heat and sun intolerance, so I have become less social.
What things have you stopped doing?
Commuting to work, which is a good thing.
What do you think about the future?
I think I'll have to be flexible and make some adjustments so I can be as healthy and happy as I can be.
Finally, what advice would you give to a person in a similar situation?
Keep reaching out for help, listen to other people's stories, learn from them and try to keep an open mind, find the gifts in what you do have left that you can do, and take good care of yourself.
