Life with NF1 and Eds type 3
May 14, 2016
By: Nicole
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MY NAME IS NICOLE I AM 19 AND SUFFER FROM NEURFIBOMATSIS TYPE 1 AND EHLERS DANLOS TYPE 3 AND ON GOING GASTRIC PROBLEMS. I HAVE SPENT MANY MONTHS IN AND OUT OF HOSPITAL, I'VE HAD MANY OPERATIONS AND PROCEDURES. BUT I DON'T LET THIS STOP ME FROM ENJOYING LIFE, I'VE TRAVELED TO AND AROUND USA ON MY OWN IN A WHEELCHAIR. I WANT TO GO AND WORK THERE NEXT YEAR AND HELP OTHER DISABLED CHILDREN AND ADULTS. I AM CURRENTLY WAITING FOR A ASSISTANCE DOG THAT WILL HELP BE MORE INDEPENDENT AND HELP ME WHEN I GO TO UNIVERSITY. I WILL NOT LET MY ILLNESS GET IN THE WAY OF MY LIFE, AS I CONTROL MY LIFE. ALWAYS BE POSITIVE.
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