Story about Ehlers Danlos , Asthma, Depression, Irritable Bowel Syndrome, Fibromyalgia, Gastroesophageal Reflux Disease, Hiatus Hernia, Anxiety, Dysautonomia / POTS, Dyslexia, Essential Tremor, Temporomandibular Joint Dysfunction, Vaginismus.

Just Call Me Complicated

Sep 5, 2016

Ehlers Danlos

Asthma Depression Irritable Bowel Syndrome Fibromyalgia Gastroesophageal Reflux Disease Hiatus Hernia Anxiety Dysautonomia / POTS Dyslexia Essential Tremor Temporomandibular Joint Dysfunction Vaginismus

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My story is more than just a little complicated. There is so much to what is going on in my story I don't even know where to start.

Perhaps we start at the beginning with far too many visits to doctors’ offices where physicians all looked at me and sadly shook their heads and said they didn't know what to suggest. There just isn't any explanation for what you are going through.

You are too young to experience the things you are going through at your age. Well, it may be true that I am too young, but I am still experiencing these things. It is true that I shouldn't be experiencing these abnormalities. When biopsies are taken and you overhear doctors say they have never seen cell formations like that or when freezing just doesn't take. When you react to the most common medications and you become an enigma.

Not unlike the thousands of people on this site I am a complex patient. With a collagen disorder breaking down every single system in my body and dozens of comorbidities in tow there isn’t a day that goes by that doesn’t require a new and specialized approach to facing the day.