A Ehlers Danlos story
Jan 26, 2017
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Spent all my life in pain and having migraines, diagnosed with hypermobility at ten but left to get on with it. Went on to have four daughters who are currently 19,18 and twins of 8. We all got diagnosed when I was 36 after I snapped at my doctors that I couldn't take the pain anymore and refused to move until they did something so they sent us to a geneticist who told us all we had hypermobility syndrome/ehlers danlos syndrome. Since then after countless more appointments we have been diagnosed with POTS and a lot of other conditions!
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