Story about Ehlers Danlos .

My EDS Journey

May 27, 2017

By: Chelsea


I grew up in a family of Jehovah's witnesses and as I got older I knew that I wanted to be one too. Learning what the Bible teaches and that there is going to be a better future has helped me stay positive and is one of the only things that keeps me going. I've always had symptoms of Ehlers danlos but didn't get diagnosed until I was 15. At 2 my mom noticed how hypermobile my fingers were, almost like Jello. At that time I had trouble breathing, I would wake up in the middle of the night hitting the floor trying to get air. I was always very accident prone, looking back I think some of my injuries were part of EDS but just brushed it off as normal. When I was 15 I woke up with a subluxed shoulder, and 5 months later I was diagnosed with EDS. I have slowly gotten worse but at this point I do still have my independence for the most part.

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