A Ehlers Danlos story
Jul 13, 2026
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Like most people with EDS it starts at being late for the milestones growing up like walking. My auntie and granny could see it (my auntie has EDS). But my mum and dad didn't want to know. At 15 I went on an Army "look at life" course where I jumped off something on an assault course sprained my ankle. When I went for physio, she told me that I was hypermobile and wouldnt help me. When I heard this I started fighting for a diagnosis because growing up I learnt about EDS. It wasn't until I was 21 that I was officially diagnosed with EDS. And now I like to help educate about EDS as well as working in an intensive care unit.
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