Story about Ehlers Danlos , Fibromyalgia.

where did it begin , where does it go

Jun 23, 2026

By: caroline


_so where do i begin ..._

_Firsttly i have a little family I am 46 i have boy girl boy girl ages 26,25,19 & 15. Now i have my 1st grandson who was born October 10th 2015 over the moon! _

_May 2010 i guess is a start after a Hernia operation thats when things went chronic and has  never  left me but have to deal with it . _

_This would be a very long post so i will just say i got my diagnosis's in the past 5 and half years now , yet was born with jhs/eds , i also have fibro, neuropathic pain, potsy, ibs, gerd, i have spinal root cord compression, with bulges/herniations, lordosis (spine twisting), lower spine narrowing, herniations/bulges, i have tons of symptoms , so will not bother posting . _

 

_I would love to have a friend local to me who i can share my personal stories with and become good friends and support one another, as it is hard as much as the internet has been such a massive help and support , having that 'reality' friend to share with would make it even better. _

 

_so please feel free to email me or find me on fb xxxxxx _

_keep positive, strong , loving, caring and sharing, supportive and try never let the illnesses defeat you xx _

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