Short answer · Medically reviewed summary · Last updated: 2026-05-08
Elastofibroma dorsi is a rare, benign, slow-growing soft tissue tumor typically located between the shoulder blade and the rib cage. You can identify it by a painless or mildly uncomfortable lump beneath the scapula that often becomes more prominent when moving your arm, and it is most frequently diagnosed in individuals over the age of 55. What are the primary symptoms of Elastofibroma dorsi? The most common sign of Elastofibroma dorsi is a firm, non-tender mass situated deep under the lower part of the shoulder blade (scapula).
1 people with Elastofibroma Dorsi have shared their first-person experience on this question at DiseaseMaps.
How do I know if I have Elastofibroma Dorsi?
Could you have Elastofibroma Dorsi? Early signs that prompted real patients to seek diagnosis, plus medically reviewed guidance.
Elastofibroma dorsi is a rare, benign, slow-growing soft tissue tumor typically located between the shoulder blade and the rib cage. You can identify it by a painless or mildly uncomfortable lump beneath the scapula that often becomes more prominent when moving your arm, and it is most frequently diagnosed in individuals over the age of 55.
What are the primary symptoms of Elastofibroma dorsi?
The most common sign of Elastofibroma dorsi is a firm, non-tender mass situated deep under the lower part of the shoulder blade (scapula). Because it is a benign growth rather than a cancerous one, it usually develops very slowly. Many people remain asymptomatic for years. When symptoms do occur, they may include:
- A feeling of "snapping" or "clicking" during shoulder movement.
- Mild discomfort or a sensation of fullness in the back.
- Occasional pain, particularly when the arm is abducted or elevated.
How is Elastofibroma dorsi diagnosed?
If you suspect you have Elastofibroma dorsi, you should consult your primary care physician to discuss the mass. Since physical exams alone cannot confirm the diagnosis, your doctor will likely order imaging. Because this condition has a very characteristic location and appearance, imaging is often sufficient to distinguish it from other soft tissue masses. Ask your doctor about the following diagnostic steps:
- Ultrasound: Often the first-line, low-cost imaging tool to visualize the mass.
- MRI or CT Scan: These are the gold standards for diagnosing Elastofibroma dorsi, as they clearly show the characteristic layered pattern of fibrous and fatty tissue.
When should I be concerned about a back mass?
While Elastofibroma dorsi is benign, any new or growing mass requires professional evaluation. Seek urgent medical attention if you notice rapid growth, persistent severe pain, significant skin changes over the area, or if the mass feels fixed to the underlying bone or deep muscle tissues. Advocacy is essential; if your concerns are dismissed, bring printed literature from reputable sources like NIH GARD to your appointment to show that you are informed about the specific characteristics of Elastofibroma dorsi.
Next steps
- Schedule an appointment with your primary care provider for a clinical examination.
- Request an MRI or high-resolution ultrasound of the subscapular region.
- Connect with others at DiseaseMaps.org to share experiences with the 7 current members diagnosed with Elastofibroma dorsi.
- Monitor the mass for any sudden changes in size or texture.
Medical disclaimer: This information is for educational purposes only and does not replace professional medical advice, diagnosis, or treatment.
References
- NIH Genetic and Rare Diseases Information Center (GARD): Elastofibroma dorsi overview.
- Orphanet: Rare disease database entry for Elastofibroma dorsi.
- PubMed: Clinical studies on the imaging characteristics of subscapular soft tissue masses.
Posted May 13, 2021 by Daniel 100
