Short answer · Medically reviewed summary · Last updated: 2026-05-08
Elastofibroma dorsi is a rare, benign, slow-growing soft tissue tumor that typically presents as a painless, firm subscapular mass. The most common symptoms include a palpable lump beneath the shoulder blade, often accompanied by a sensation of snapping, clicking, or discomfort during scapular movement. What are the most common symptoms of Elastofibroma dorsi? The hallmark of Elastofibroma dorsi is a deep-seated mass located between the scapula and the thoracic wall.
Which are the symptoms of Elastofibroma Dorsi?
Symptoms of Elastofibroma Dorsi reported by real patients, from the most common to the most limiting, plus a medically reviewed summary with sources.
Elastofibroma dorsi is a rare, benign, slow-growing soft tissue tumor that typically presents as a painless, firm subscapular mass. The most common symptoms include a palpable lump beneath the shoulder blade, often accompanied by a sensation of snapping, clicking, or discomfort during scapular movement.
What are the most common symptoms of Elastofibroma dorsi?
The hallmark of Elastofibroma dorsi is a deep-seated mass located between the scapula and the thoracic wall. While many patients are asymptomatic, others report localized symptoms that typically include:
- A palpable, firm, non-tender swelling beneath the shoulder blade.
- A snapping or clunking sensation when moving the arm or shoulder.
- Mild localized pain or discomfort, particularly after repetitive physical activity.
- A feeling of fullness or tightness in the upper back region.
How does Elastofibroma dorsi impact daily quality of life?
For the seven members currently sharing their experiences on DiseaseMaps.org, the impact of Elastofibroma dorsi varies significantly. While the tumor is benign, the mechanical obstruction caused by the mass can restrict range of motion. Patients may find daily tasks—such as reaching overhead or repetitive lifting—to be physically uncomfortable or distracting due to the sensation of the scapula catching on the lesion.
When should I see a doctor about these symptoms?
Although Elastofibroma dorsi is not malignant, you should consult a physician if you notice any changes in the mass. Seek medical attention if you experience:
- Rapid increase in the size of the lump.
- Development of significant or persistent pain.
- Neurological symptoms, such as numbness or tingling in the arm or hand.
- New limitations in your shoulder mobility that affect your daily routine.
How does the progression of Elastofibroma dorsi change over time?
Elastofibroma dorsi is characterized by a very slow growth rate. Because it is a fibroelastic proliferation rather than a true neoplasm, it does not metastasize. Over many years, the mass may gradually enlarge, but it remains localized to the subscapular space. In most cases, Elastofibroma dorsi symptoms remain stable, and surgical intervention is only required if the mass becomes symptomatic enough to interfere with the patient's quality of life.
Next steps
- Consult an orthopedic surgeon or a soft tissue sarcoma specialist for an imaging evaluation (MRI is the gold standard).
- Join the DiseaseMaps.org community to connect with others managing this condition.
- Keep a symptom diary to track any changes in the size or sensation of the mass.
Medical disclaimer: This content is for informational purposes only and does not constitute professional medical advice, diagnosis, or treatment. Always seek the advice of your physician with any questions regarding a medical condition.
References
- NIH Genetic and Rare Diseases Information Center (GARD)
- Orphanet: Rare Disease Database
- PubMed: Clinical reviews on subscapular soft tissue lesions
- OMIM (Online Mendelian Inheritance in Man)
