8
Which advice would you give to someone who has just been diagnosed with Eosinophilic Gastroenteritis?
Advice for the newly diagnosed with Eosinophilic Gastroenteritis, written by people who have lived it. What they wish they had known on day one.
Join a support group. APFED and CURED provide both local and online support groups for individuals and family members dealing with Eosinophilic diseases. These support groups provide amazing educational opportunities and an understanding community. The months first following a diagnosis can be confusing and scary. However, life with EGE can be limitless. By educating ourselves we can learn to live a fear free life.
Posted Sep 14, 2017 by Gail 2000
It would have been great if my doctor would have handed me a packet all about my disease and what to expect and how to treat it. But that didn't happen. I was told it was too rare to unresearched, and that I was really faking most of it. It's important to do your own research from the beginning. Don't necessarily rely on a doctor to lead you, they assume you know about your condition since you have it.
Posted Jul 27, 2020 by Sydney 4050
