Help us to help more people
  2. Erythromelalgia
  3. Advice
Patience
by Martha Osborne
Getting proper treatment and help
by Britt long
Sit with feet elevated
by Virginia basham
Avoiding warm to hot environments when at all possible and the use of fans are my life savers.
by Tollie Godwin
dr. Teodori
by heather
Staying busy
by monica
Eliminating alcohol and spicy foods from my diet
by Mary Crumly
Gel packs kept in fridge to cool burning
by Paula Childers
cooling fans are a must
by Cindy Reilly
Accepting the fact that my life have to be different now.
by MMG
My scooter aka the mickmobile
by Susan Czetwerzuk
going barefoot
by Richard Van Ausdal
My husband
by Patty
elevating feet over head
by Amy
Walk als little als I can ; always sit with my feet high and a fan directed on my feet
by Marijke van de Riet
No exertion
by Dee Now
Happy distractions mostly but compound topical cream with clonidine (0.2%), ketamine (10%), gaba(pentin?) (6%) helps a tiny bit
by Samara Rose
Cold packs elevating and fans
by Viv
TENs unit
by Vicky
Cut all hot spicy foods from diet
by Julia B
Mexilitene
by Prentha
BY RESTING AND EATING HEALTHY
by Jan Peter TANGHE
Yoga
by LYNN
Elevate feet, cooling mats & compression bandages
by Sandy k
Great support from my family
by Kim
Avoiding the sun especially in the afternoon
by
Being positive & looking for ways to managing this condition
by Louise
No outdoor yard duty
by andrea
Gabapentin , Endep and aspirin are the meds I am taking that have helped my pain.
by Louise
Positive attitude
by Weasel
Finding out that spicy foods and alcohol were a large factor in causing more pain and burning outbursts
by MaryHenry10
Peace
by Ismeralda Leila
When I am not working
by Donna
getting together with friends when I can and laughing
by Kathleen
Elevating limbs and resting when having a bad flare
by Rebecca
support of family and friends
by wen
Switched to a vegan diet (for ethical reasons rather than EM, but it helped nonetheless)
by Sara
Fans
by Christa
Fans
by Christa
Mommy snuggles (medication is still up in the air)
by Eleanor
Finding ways to serve others in the midst of my pain so the focus isn't just on me.
by jennifergehman
sleeping with feet outside blankets
by Anne
Friends and family
by Afton
Heat desensitisation therapy sosking in a hot bath for 30 minutes every night
by Andrea
Learning to focus on and control my breathing helps to manage the anxiety as well.
by Bernadette
My piano and music
by Stephanie Briggs
My physician is so willing to read research I bring him and work with me to find solutions.
by Kimberlee
No alcohol, less sugar.
by Suzanne
Minimizing stress and remaining positive
by Kathy
I wear boots (Ariat western boots) to better frame/protect feet vs sneakers/soft shoes.
by Renea