- Erythromelalgia
- Interviews
Julie's interview
How did all start?
Had it from birth
Do you already have a diagnosis? How long did it take you to get it?
15 years
For what medical specialties have you been treated? What has been the most useful specialty for your?
Nothing nothing no
What have been your biggest difficulties?
Living
How has your social and family environment reacted? Have your social or family relationships changed?
Yes
What things have you stopped doing?
Most things
What do you think about the future?
Bleak
So far, which years have been the best years in your life? What have you done during them?
Non
What would you like to do if you didn’t have your condition?
Live
If you had to describe your life in a sentence, what would it be?
Life sentence
Finally, what advice would you give to a person in a similar situation?
Fight
