- Erythromelalgia
- Interviews
Leanne's interview
How did all start?
I found that my long walks started be become painful
Do you already have a diagnosis? How long did it take you to get it?
Yes recently diagnosed but have had symptoms for approx 5 years. Finally found a Dr(rheumatologist) that could identify the symptoms
For what medical specialties have you been treated? What has been the most useful specialty for your?
Neurologist.......locked on migraines and raynauds
Physiotherapist........trued really hard
Rheumatologist......WINNER
What has been the most useful thing for you so far?
Having my condition acknowledged
What have been your biggest difficulties?
Sleeping, exercise, walking at any pace other than
How has your social and family environment reacted? Have your social or family relationships changed?
A little lack of understanding
What things have you stopped doing?
Exercising
What do you think about the future?
It’s not going to win
So far, which years have been the best years in your life? What have you done during them?
40’s travelled, trekked, white water rafting, adventure
What would you like to do if you didn’t have your condition?
Be trekking
If you had to describe your life in a sentence, what would it be?
Pretty good, I have beautiful children, grand children and partner. This won’t beat me
Finally, what advice would you give to a person in a similar situation?
Join support groups, ask questions and don’t let Drs get away with just writing scripts or ignoring you.
