Invisible journey
May 3, 2016
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l began to suffer with this condition after a holiday in Barcelona,at the time l came home everyone thought l had DVT as both my feet & legs were very painful & swollen. After numerous visits to my GP & several refferals to different consultants,to rule out other causes. All this time passed by with no relief,in fact l began to feel completly frustrated & my GP gave the impression we had exhausted all avenues. I refused to give up & changed GP, this rekindled my faith as l was referred to see a rheumatologist in march 2016 with confirmation of this condition & raynards syndrome (from childhood). Don't give up! once reading up on this rare condition l only want to know more to help myself,my family,my employer & to support/share ideas with other sufferers. I am now a full lifetime member of the 'EM' club.
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