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How do I know if I have Erythromelalgia?
What signs or symptoms may make you suspect you may have Erythromelalgia. People who have experience in Erythromelalgia offer advice of what things may make you suspicious and which doctor you should go to to receive treatment
If you have any of the symptoms I explained earlier such as flare-ups, burning pain, redness in the face, hands, feet mostly then that is a good indicator. I would avoid going to a primary doctor because 90% of the time they will have not even heard of this disease. I would go and see a rheumatologist.
Posted Sep 16, 2017 by Jeff 3050
You can self diagnose by symptoms or go to several docs like rhumatologists, hematologists, and neurologists who will do lots of tests to rule out other diseases.
Posted Dec 27, 2017 by mleaver 2500
Becoming much more tired, waking up at night in pain. Swollen and bright red joints. Feels like you are being burned
Posted Apr 4, 2018 by Alys 2500
They call it “burning man” disease. Pain, redness, hot. I would research for a doc in the area with experience treating EM. Too many don’t know what it is, or don’t believe you. Take pictures in natural light against a solid color background is usually best.
Posted Jan 18, 2021 by Kathy Vanicek 2500
If your feet/hands turn red and feel like glass or are burning than it’s time to go to a rheumatologist. Before you go, see if it’s triggered by heat. If not than it’s probably not EM. If it is than I’d be concerned that it is.
Posted Aug 14, 2021 by saguaros 3000
