¿Qué consejos darías a una persona que acaba de ser diagnosticada con Síndrome de Alagille?

Consejos de personas con experiencia en Síndrome de Alagille para personas que acaban de ser diagnosticadas con Síndrome de Alagille

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Seeking out for answers and question online in support groups the best way you can get information for just being diagnosed. When i was younger there wasnt the online support group that there is now. And im almost 18 and i still to this date seek out information because with out a doubt someone has at least experienced or is experiencing what you are going through. And the good thing is you could be helping someone else if they ask a question. I really recommend it. And you can look through all the questions asked its perfect.

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