¿Qué consejos darías a una persona que acaba de ser diagnosticada con Síndrome CHARGE?

Consejos de personas con experiencia en Síndrome CHARGE para personas que acaban de ser diagnosticadas con Síndrome CHARGE

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If the chargers himself just has been diagnosed and is able to read my comment, he overcame the worst...
For the parents, too much things to know about this disease, be in trust and speak a lot with the nurses and doctors, we will be doing the same job very soon!

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