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Check out these facebook groups, "Colloid cyst survivors"; and "America's Colloid cyst survivors". Be your own advocate. These things are so rare my neurosurgeon said they only got about 10 minutes on them in Med school. We are often told, "it is just a cyst, your symptoms are not caused by it." They really don't know better. It is a benign cyst in a malignant location, (quote from Dr. Narendra Nathoo, neurosurgeon). Call neurosurgeon s, go see them and make sure they are aware what these things are before you allow them to be in charge of your care.