Original
Life expectancy is completely unknown because Evans is so unpredictable. Anything is possible. I could have a severe relapse tomorrow and not survive it, or I could live a normal lifespan. This is not a disorder where anyone can give a live expectancy. So my expectation is a normal lifespan.
The biggest risks for me are if I have a severe relapse and don't respond to any treatments. The other big risk for me is because I had a splenectomy to treat Evans, there are increased risks of blood clots and sepsis.
There is a lot of research happening right now about the immune system. My view is that advances in treatment will probably come from this research, although I don't know of any research specific to Evans right now.