¿Cómo vivir con Síndrome de Evans? ¿Se puede ser feliz con Síndrome de Evans? ¿Qué hay que hacer para ser feliz con Síndrome de Evans?

Vivir con Síndrome de Evans: cómo afrontan el día a día los pacientes y consejos prácticos de quienes lo viven.

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Get support to work through the impact of Evans. Be aware that if you become very unwell that it can be terrifying to friends and family.
I think it's important to take each day as it comes and not focus too much on the constant possibility of relapse or the 7% mortality rate.
One can live very well with Evans. Don't let it take over your life.
I use a lot of mindfulness and acceptance and commitment therapy approaches on myself. It's been gratifying to know that the strategies I use with clients have also helped me!

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