¿Qué consejos darías a una persona que acaba de ser diagnosticada con Glucogenosis?

Consejos para recién diagnosticados de Glucogenosis, escritos por quienes ya lo han vivido: lo que les habría gustado saber el primer día.

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With type 3 don't be overwhelmed and don't believe everything you hear. Most doctors have never heard of it or if they have, they have never treated anyone with it. Do your research and talk to many people who deal with it. Then formulate your own plan and go with it. You are your best advocate and will know your situation better than anyone!

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