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If I have any advice, I would say, be accepting of this diagnosis and be patient. I had to accept that I had to take medicine for a prolonged time, even though I was in denial the entire time. It took me a good month that I needed to take medicine for awhile. I’m also still accepting that it's a life long disease. I also need to be patient, especially with my doctors. You need to trust that the doctors know what is best for you and what steps to take after each appointment for your future.
If I went back in time, I would have gone to the doctors earlier. I had it undiagnosed for almost two years and wished that I could have been diagnosed earlier and not ending up in emergency in critical condition. After being diagnosed, I don't want anyone to be feeling terrible, like I did and wished that I didn't have it at all.