¿Qué consejos darías a una persona que acaba de ser diagnosticada con Hemocromatosis Hereditaria?

Consejos para recién diagnosticados de Hemocromatosis Hereditaria, escritos por quienes ya lo han vivido: lo que les habría gustado saber el primer día.

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See the answers given further up.

In addition:

Please do not despair if you have to wait for a couple of months before your treatment starts. It is normal for high level of Ferritin that you do phlebotomy once per week during the first weeks/months. It is also normal with a short peak up on the Ferritin level after you have had some of the first phlebotomies. It is also normal that the Transferrin Saturation only drops below 45-50 % at he the very end of the series of phlebotomies and when the Serum Ferritin drops below 50. It also take some time before your extreme tiredness disappear.

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