¿Qué consejos darías a una persona que acaba de ser diagnosticada con Síndrome MIRAGE?

Consejos para recién diagnosticados de Síndrome MIRAGE, escritos por quienes ya lo han vivido: lo que les habría gustado saber el primer día.

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Seek answers. Do not be passive. If a doctor isn't explaining themselves sufficiently, ask for a different doctor. It is essential that all members of the care team communicate effectively, and never forget that you are a vital member of the team. Trust your instincts. Be prepared to repeat yourself again and again, if necessary. Keep detailed records of hospitalizations, diagnoses, medications, doctor names and contact information, everything.

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