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1. You are not alone. Many others have this rare disorder. More physicians are knowledgeable about it. They even treat you well when you say the name! When my dysautonomia became apparent, the physicians did NOT accept such a thing, though many did. Just not those near me.
2. Continue to learn about the disorder.
3. Teach those closest to you about MVPS/D.
4. Forget about others not understanding.
5. Eat right.
6. Drink enough liquids, esp. water.
7. Exercise.
8. Don't be down on yourself if you have terrible days (and nights). You will endure.
9. If you have bad days, learn to ENDURE. Life will go on.
10. Learn patience and tolerance.