¿Qué consejos darías a una persona que acaba de ser diagnosticada con Síndrome De Nager?

Consejos de personas con experiencia en Síndrome De Nager para personas que acaban de ser diagnosticadas con Síndrome De Nager

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I would say Welcome to the Family! This can be a wonderful thing to become familiar with your doctors and top nurses, and the surgeries are just another thing you have to go through, not a lot of options. I would have grown up more proud of myself if I wasn't so darn quiet shy kid thing.

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