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There have been many great advancements in medicine for people with NF. Life expectancy can vary. For me being told I had NF and that I probably wouldn;t live through the night (May 28,1994)and its been over 20 years since that diagnosis and I am still alive. It has been a long long road, with ups and downs, and curves and bumpy roads. I think that most complications are due to infection and the infection reoccuring or another being contracted. There are many new things that I have heard of to help, being new medications, therapies-- like wound vacuums and hyperbaric chambers, are some of the ones I know of. With the internet, reaching out to others who have had NF or have it is important.