¿Cual es la esperanza de vida con Distrofia muscular oculofaríngea?

Esperanza de vida de las personas diagnosticadas de Distrofia muscular oculofaríngea

Original


Since my granddad passed away 25 years ago due to OPMD. I cannot see big improvements on the cure/treatment of this disease. To be honest, we are very little group of people in the world with this disease and I do not know how much effort/money would invest any pharmaceutical in us :-(

Traducido