¿Cual es la esperanza de vida con Distrofia muscular oculofaríngea?

Esperanza de vida con Distrofia muscular oculofaríngea: qué dicen la investigación y los pacientes, avances recientes y resumen revisado con fuentes.

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Since my granddad passed away 25 years ago due to OPMD. I cannot see big improvements on the cure/treatment of this disease. To be honest, we are very little group of people in the world with this disease and I do not know how much effort/money would invest any pharmaceutical in us :-(

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