¿Qué consejos darías a una persona que acaba de ser diagnosticada con Síndrome de Pierre Robin?

Consejos de personas con experiencia en Síndrome de Pierre Robin para personas que acaban de ser diagnosticadas con Síndrome de Pierre Robin

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Rightt now the condition probably seems really scary but things will get better. I remember being told this and not believing it, it felt like one thing after the next. Try and talk to people that have children with prs for reassurance, get advice from your cleft team and try not to panic. The jaw comes forward the cleft can be fixed and by the time your child's 2 you won't see many differences with other children their age.

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