Original
When I was diagnosed I was relieved because they finally found out what was wrong with me and we could treat it as such. Don't let people bring you down. Embrace the "I hope you feel better" "I hope you get better soon" because others just don't understand. I have a positive attitude as a person and always have so that has helped me but letting people be there for me and not being so stubborn and independent has helped. Ive had to let others help and not feel bad about it. I never received "advice" per say because it is so rare, I had to cope on my own and used it as an opportunity to be there for others to try to give advice and help others with SPS is BS on Facebook and our website.