¿Qué consejos darías a una persona que acaba de ser diagnosticada con Síndrome de Sturge-Weber?

Consejos de personas con experiencia en Síndrome de Sturge-Weber para personas que acaban de ser diagnosticadas con Síndrome de Sturge-Weber

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Sturge-Weber Syndrome is never the parents fault. They did not do anything to cause this to happen to their child. Take your child to a neurologist, dermtologist, and opthomologist. Watch them closely. Although your child will exhibit the symptoms of sturge-weber the severities. do not be overprotective. Let them flourish like a normal child. Teasing will occour, but instead of getting mad, teach others about your child's condition. Awareness goes a long way. Make sure they get the appropriate help so they may succeed in school. Every Sturge-Weber child is different and will have differing life challenges.

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