¿Qué consejos darías a una persona que acaba de ser diagnosticada con Síndrome de Usher?

Consejos para recién diagnosticados de Síndrome de Usher, escritos por quienes ya lo han vivido: lo que les habría gustado saber el primer día.

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I know it is very hard to be diagnosed with this awful disease and that it will have a great impact on your future life. But Usher Syndrome isn't the end of the road. I think one lesson would be the most important lesson you could ever get, focus on your ability - the awesome things you can be, or can do. Think big, not small. Other people have problems to. You are special and you have a great life ahead of you.

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