Story about Essential Thrombocythemia .

My diagnosis

Aug 11, 2017

By: Nicky


In 2011 at the age of 42 I was diagnosed with Myeloproliferative Neoplasm (or MPN) and after a bone marrow biopsy, Essential Thrombocythemia (ET) was diagnosed. I am also JAK2+

I take a daily dosis of 1 500mg Hydrea which is an oral chemo and sometimes people find it hard to believe or understand. But hey, I'm happy and blessed to only have the orphan of cancers! 

My treatment took six years to stabilise my platelets and I have less days now filled with fatigue, bone pains or nausea or sometimes all symptoms simultaneously! 

Some days I'm so tired - a tiredness you cannot explain to people and if it's a weekend with no plans I can sleep through it!!! 

I remain positive and know that if God does not heal me in this lifetime, He will heal me in my next and final one.🙌🏻

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Living with Essential Thrombocythemia

Living with Essential Thrombocythemia. How to live with Essential Thro...

Do I have Essential Thrombocythemia?

How do I know if I have Essential Thrombocythemia?

Essential Thrombocythemia symptoms

Which are the symptoms of Essential Thrombocythemia?

Essential Thrombocythemia is also known as...

Essential Thrombocythemia synonyms

Essential Thrombocythemia advice

Which advice would you give to someone who has just been diagnosed wit...

Is Essential Thrombocythemia contagious?

Is Essential Thrombocythemia contagious?

Essential Thrombocythemia sports

Is it advisable to do exercise when affected by Essential Thrombocythe...

Latest progress of Essential Thrombocythemia

What are the latest advances in Essential Thrombocythemia?