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Living with Evans Syndrome. How to live with Evans Syndrome?

Living with Evans Syndrome: how patients cope day to day and stay positive - real experiences and practical tips.

Living with Evans Syndrome
1 answer
Get support to work through the impact of Evans. Be aware that if you become very unwell that it can be terrifying to friends and family.
I think it's important to take each day as it comes and not focus too much on the constant possibility of relapse or the 7% mortality rate.
One can live very well with Evans. Don't let it take over your life.
I use a lot of mindfulness and acceptance and commitment therapy approaches on myself. It's been gratifying to know that the strategies I use with clients have also helped me!

Posted Mar 4, 2017 by Ceara 1000

Living with Evans Syndrome

Evans Syndrome life expectancy

What is the life expectancy of someone with Evans Syndrome?

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Celebrities with Evans Syndrome

Celebrities with Evans Syndrome

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Is Evans Syndrome hereditary?

Is Evans Syndrome hereditary?

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Is Evans Syndrome contagious?

Is Evans Syndrome contagious?

2 answers
ICD9 and ICD10 codes of Evans Syndrome

ICD10 code of Evans Syndrome and ICD9 code

1 answer
Natural treatment of Evans Syndrome

Is there any natural treatment for Evans Syndrome?

1 answer
Evans Syndrome diet

Evans Syndrome diet. Is there a diet which improves the quality of life of ...

2 answers
History of Evans Syndrome

What is the history of Evans Syndrome?

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World map of Evans Syndrome

Find people with Evans Syndrome through the map. Connect with them and share experiences. Join the Evans Syndrome community.

Stories of Evans Syndrome

EVANS SYNDROME STORIES
Evans Syndrome stories
I was diagnosed with Evan's syndrome a little over a year ago . I have been in the hospital with high fevers and bad infections. Had a lot of antibiotics . Also can't take steroids because they cause sever manic episodes . I have had rituxan infusion...
Evans Syndrome stories
My daughter has been fighting her autoimmune illness since she was a baby.  At 4 years of age she was finally hospitalized and the doctor's began researching for answers.  She was an enigma to our team of doctor's. Her illness is similar to Evan's ...
Evans Syndrome stories
Diagnosed  with glandular fever in 2010.  After having blood test the doctor found that I had very low blood platelets.  I was put into hospital and diagnosed with lupus (4 out of 7 signs) and later with Evans Syndrome.  On medium to high doses o...
Evans Syndrome stories
Something was wrong. My hair was changing. My skin was changing. I just didn’t feel good. I caught every cold that walked through the door, and once they came to visit, they were very hard to shake. Yes...something was wrong. My doctor sent me ...

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Evans Syndrome forum

EVANS SYNDROME FORUM

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