Get support to work through the impact of Evans. Be aware that if you become very unwell that it can be terrifying to friends and family.
I think it's important to take each day as it comes and not focus too much on the constant possibility of relapse or the 7% mortality rate.
One can live very well with Evans. Don't let it take over your life.
I use a lot of mindfulness and acceptance and commitment therapy approaches on myself. It's been gratifying to know that the strategies I use with clients have also helped me!
I was diagnosed with Evan's syndrome a little over a year ago . I have been in the hospital with high fevers and bad infections. Had a lot of antibiotics . Also can't take steroids because they cause sever manic episodes . I have had rituxan infusion...
My daughter has been fighting her autoimmune illness since she was a baby. At 4 years of age she was finally hospitalized and the doctor's began researching for answers. She was an enigma to our team of doctor's. Her illness is similar to Evan's ...
Diagnosed with glandular fever in 2010. After having blood test the doctor found that I had very low blood platelets. I was put into hospital and diagnosed with lupus (4 out of 7 signs) and later with Evans Syndrome. On medium to high doses o...
Something was wrong. My hair was changing. My skin was changing. I just didn’t feel good. I caught every cold that walked through the door, and once they came to visit, they were very hard to shake. Yes...something was wrong.
My doctor sent me ...