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What are the best treatments for Evans Syndrome?

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Evans Syndrome treatments
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The best treatments for Evans can be different for every patient. It's why it's a tricky condition to manage.
First line treatment is usually steroids and they can help many patients. IVIG is common early on too, especially if platelets are low. Blood transfusions to help manage the haemolytic anaemia can give pretty quick relief but does nothing to stop the cell deaths. It can however keep you alive long enough to try other treatments in the case of a severe relapse. And if a relapse is mild occasional blood transfusions might be enough to keep the symptoms manageable.
Rituximab is probably the next treatment that is tried most often here. For some people it will cause remission. It didn't for me.
The next line of treatment for me came down to chemotherapy or a splenectomy. I decided on a splenectomy at the recommendation of the experienced department head of haematology/oncology overseeing my care. Because I'm young, the splenectomy has (we think) a greater chance of long term success and a better side effect profile.

If all of these treatments fail, the very last option is a stem cell transplant. It has a high risk of death. If people live, they're cured though as their immune system is effectively replaced. It's highly experimental and highly lethal.

Posted Mar 4, 2017 by Ceara 1000

Evans Syndrome treatments

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World map of Evans Syndrome

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Stories of Evans Syndrome

EVANS SYNDROME STORIES
Evans Syndrome stories
My daughter has been fighting her autoimmune illness since she was a baby.  At 4 years of age she was finally hospitalized and the doctor's began researching for answers.  She was an enigma to our team of doctor's. Her illness is similar to Evan's ...
Evans Syndrome stories
I was diagnosed with Evan's syndrome a little over a year ago . I have been in the hospital with high fevers and bad infections. Had a lot of antibiotics . Also can't take steroids because they cause sever manic episodes . I have had rituxan infusion...
Evans Syndrome stories
Diagnosed  with glandular fever in 2010.  After having blood test the doctor found that I had very low blood platelets.  I was put into hospital and diagnosed with lupus (4 out of 7 signs) and later with Evans Syndrome.  On medium to high doses o...
Evans Syndrome stories
Something was wrong. My hair was changing. My skin was changing. I just didn’t feel good. I caught every cold that walked through the door, and once they came to visit, they were very hard to shake. Yes...something was wrong. My doctor sent me ...

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