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Can people with Fabry disease work? What kind of work can they perform?
Can you work with Fabry disease? Real patients share what jobs they do and how they adapted, plus practical guidance.
Depends on the severity/progression of your disease. I was diagnosed fairly early and so my version is mild and have no problem working a normal job but I certainly can't do all jobs that I could without Fabry Disease.
Fabry caused erythromelalgia (burning in my hands, feet and ears/head) and hypohidrosis (I don't sweat enough) so, for example, I couldn't serve coffee or work outdoors while it's warm.
Severe cases can disable the person with Fabry Disease. Given the variety of medical problems possible (see the symptoms page) and the persons severity, working will vary on a case by case basis.
Fabry caused erythromelalgia (burning in my hands, feet and ears/head) and hypohidrosis (I don't sweat enough) so, for example, I couldn't serve coffee or work outdoors while it's warm.
Severe cases can disable the person with Fabry Disease. Given the variety of medical problems possible (see the symptoms page) and the persons severity, working will vary on a case by case basis.
Posted Jul 1, 2020 by Fabry Father 1100
Translated from spanish
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I am working since I was 20 years old. I had problems with the heat that I was experiencing pain in the hands and feet, and a lot of discomfort. This is solucinó partially in an employment with air conditioning.
From the time of diagnosis and treatment I improved very much, even though years are passing and there are still things that bother me, like the cramps, the sensations of heat and cold that my nervous system does not interpret correctly. Sometimes headaches, and migraines. But I will be doing. I'm going to work with win, but sometimes I think that best would be quietly in my home, my work is very stressful.
From the time of diagnosis and treatment I improved very much, even though years are passing and there are still things that bother me, like the cramps, the sensations of heat and cold that my nervous system does not interpret correctly. Sometimes headaches, and migraines. But I will be doing. I'm going to work with win, but sometimes I think that best would be quietly in my home, my work is very stressful.
Posted Aug 27, 2017 by RAFA 300
