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Which advice would you give to someone who has just been diagnosed with Familial Adenomatous Polyposis?
See some advice from people with experience in Familial Adenomatous Polyposis to people who have just been diagnosed with Familial Adenomatous Polyposis
Go to a doctor/hospital with a Fap GI/geneticist like mine. Mayo Clinic Jacksonville Fl Dr. Douglas Riegert-Johnson
Posted May 18, 2017 by Holly 2000
Understand your diagnosis by asking your medical team questions, research your condition and remain positive
Posted May 19, 2017 by Daniel 2570
It is scary to find out that you have such a high risk of developing cancer. But through a few steps, you can reduce the chances of developing many polyps. My grandfather is in his 70's and is living a normal life. The colonoscopies are inconvenient and can be embarrassing, but they allow you to stay on top of your life. My best advice is to research the disease. Talk to other people who have it, and make an effort to see your gastroenterologist on a regular basis.
Posted Sep 28, 2017 by Jennifer 1600
Go to MD Anderson or Cleaveland Clinic for the best medical care. Don't miss your scopes. Don't use a doctor that's not already treating a number of FAP patients. Choose a doctor that is continually educating themselves on the studies and information coming out for FAP.
Posted Sep 29, 2017 by ChristiDarty 1300
