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What is the life expectancy of someone with Familial Adenomatous Polyposis?

Life expectancy of people with Familial Adenomatous Polyposis and recent progresses and researches in Familial Adenomatous Polyposis

Familial Adenomatous Polyposis life expectancy
4 answers
Depends on care recieved

Posted May 18, 2017 by Holly 2000
It varies on when diagnosed

Posted May 19, 2017 by Daniel 2570
Thanks to modern medicine the life expectancy of someone with FAP is not shorter than someone without it.

Posted Sep 28, 2017 by Jennifer 1600
I am 62 and have FAP, Diagnosed in 1990, I have a J pouch. I have yearly endoscopies to look for polyps. Each year they find more but we are keeping on top of them. I will soon be swollening a camera to look for more in my small intestine. The problem with Fap is that cancer will show up in other parts of the body. I had a tumor cut out of the bile cut of my pancreas, it was pre=cancer and the specialist said it would have killed me in a couple of years. Tumors removed from my jaws 3 times, Eventually losing all my teeth. Mastist in my right breast off and on for ten years. In March 2018 I was diagnosed with breast cancer in my right breast and had a mastectomy. I keep fighting. I will see this through and come out the other side. Have faith in yourself and the doctors treating you. Jackie Martin

Posted Nov 4, 2018 by Jackie Martin 100

Familial Adenomatous Polyposis life expectancy

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World map of Familial Adenomatous Polyposis

Find people with Familial Adenomatous Polyposis through the map. Connect with them and share experiences. Join the Familial Adenomatous Polyposis community.

Stories of Familial Adenomatous Polyposis

FAMILIAL ADENOMATOUS POLYPOSIS STORIES
Familial Adenomatous Polyposis stories
Hi.  In May 2011, after a 10 day stay at a local hospital that started on Mother's Day where it was first thought that I had an appendicitis I went home with the results of a scope that found cancer in my decending colon and waiting for the result o...
Familial Adenomatous Polyposis stories
I found out at the age of 31 yrs that I had FAP, I was adopted and did not know about the disease in my birth dads family. I was not given a good out come after surgery but weeks afterwards the biopsies came in and there was no cancer, we all were so...
Familial Adenomatous Polyposis stories
Hi, all! So first of all, I found the link to this map here: https://www.facebook.com/groups/257034824414129/ There are tons of online resources for us. I especially love j-pouch.org, which has its own FAP section and a MASSIVE forum for you to ran...
Familial Adenomatous Polyposis stories
Https://www.army.mil/article/90122
Familial Adenomatous Polyposis stories

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Familial Adenomatous Polyposis forum

FAMILIAL ADENOMATOUS POLYPOSIS FORUM
Familial Adenomatous Polyposis forum
What mediciations or therapies have you found that are successful in limiting or reducing the growth of polyps?

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