A Familial Hypercholesterolemia interview , Sarcoidosis.

Peter's interview


How did all start?

Diagnosed 1969 by DR John Court at Royal Childrens Hospital Melbourne Australia. Of course, condition exists before birth.

Do you already have a diagnosis? How long did it take you to get it?

see above

For what medical specialties have you been treated? What has been the most useful specialty for your?

FH. am 70 years old. Lipid treatment with Statins have kept me in reasonable cardiovascular health

What has been the most useful thing for you so far?

Statins

What have been your biggest difficulties?

Diagnosed with sarcoidosis over fifteen years ago.

How has your social and family environment reacted? Have your social or family relationships changed?

no

What things have you stopped doing?

shortage of oxygen slows my physical activities.

What do you think about the future?

Hope for a cure

So far, which years have been the best years in your life? What have you done during them?

Retirement about six years ago.

What would you like to do if you didn’t have your condition?

Same as I'm doing now.

If you had to describe your life in a sentence, what would it be?

Satisfying.

Finally, what advice would you give to a person in a similar situation?

Find a good Pulmonary Clinician and Research Hospital


Sep 11, 2019

By: Peter

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