Story about Fanconi Anemia .

Me

Mar 27, 2017


My name is Jacy Louise Box. I was born 11/08/1991. I was born with an extra thumb on my right hand (surgically removed) when I was an infant. My left hand had no ligament (had surgery). I was born with a cleft palate (I've had plenty of surgeries on it). I am partially deaf in both ears (multiple surgeries). I am petite. 4'11". My weight doesn't really change much it ranges between 60 something to barely 80 something if I am lucky. I found out I had Fanconi Anemia at the age of 11 despite being at a confress with MULTIPLE doctors when I was an infant for my two thumbs. My sister also has Fanconi Anemia. We lived in Cincinnati Ohio for 6 or 7 years for the children's hospital. We now live back in Haysville Kansas. I was 12 years old when I went through menopause. I have no immune system. I have not gone through a bone marrow transplant. I have never had the chicken pox. Uhm.. That's all I can think of. Any questions hit me up on Facebook. 

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