Which advice would you give to someone who has just been diagnosed with Fanconi Anemia?

Advice for the newly diagnosed with Fanconi Anemia, written by people who have lived it. What they wish they had known on day one.

Original

recomiendo un libro que cuenta la experiencia de cuatro personas con esta enfermedad, para que cualquiera pueda conocerla, de venta en Amazon:

https://www.amazon.es/ANEMIA-FANCONI-EXPERIENCIA-ENFERMEDAD-RARA/dp/1521487286/ref=sr_1_1?ie=UTF8&qid=1500408965&sr=8-1&keywords=anemia+de+fanconi

Which advice would you give to someone who has just been diagnosed with Fanconi Anemia?

Advice for the newly diagnosed with Fanconi Anemia, written by people who have lived it. What they wish they had known on day one.

Original

Translated