Paratonnerre

Paratonnerre is an association which gather families with a child affected by FIRES syndrom and their supports.

Our group is based in France (Lyon) and is in touch with worldwide families.

Paratonnerre aims to advance research : discover cause, improve medical care during acute phase and in long-terme, ameliorate child rehabilitation...

Paratonnerre allows French speaking families to meet and exchange their experiences.

The main project of the association is to constitute a medical data base and then propose it to resarch teams. This will allow to better understand the FIRES syndrom.

The association can rely on a scientific committee composed of doctors to support this purpose.

 

Website : www.associationparatonnerre.org

Facebook : https://www.facebook.com/AssociationParatonnerre/

 

Forum (discussion in French) :https://www.facebook.com/groups/541202919303959/?fref=ts