Story about Fibrous Dysplasia .

My Daughter

Jun 9, 2017


MY DAUGHTER WAS DIAGNOSED IN AUGUST OF 2016 AFTER A HIP INJURY DUE TO DRILL TEAM. I THOUGHT AT FIRST SHE WAS JUST OUT OF SHAPE SINCE SHE WAS RETURNING TO DANCE AFTER SUMMER VACATION, HER PAIN BECAME WORSE SO I MADE APPOINTMENT WITH FAMILY DOCTOR, 3 DAYS LATER GOT A CALL FROM DOCTOR OFFICE SAYING WE NEEDED TO SEE A ORTHO IMMEDIATELY THERE WAS A ABNORMAL FINDING ON HER XRAY.  FIRST ORTHO WE SEEN SAID WAS JUST A SIMPLE CYST AND WOULD CAUSE NO PROBLEMS, BUT ORDERED A MRI ANYWAY A WEEK LATER RECIEVED PHONE CALL SAYING NEEDED TO SEE A MORE EXPERIENCED ORTHO THERE WAS A CONCERN WITH MRI. AT THAT TIME ORTHO CONFIREMED FD. SHE WAS IN SO MUCH PAIN SHE BECAME UNABLE TO WALK, ATTENDING SCHOOL BECAME ALMOST IMPOSSIBLE. SHE HAD TO START A HOMEBOUND PROGRAM.  AND OUR JOURNEY BEGAN WITH FD. SHE IS NOW GOING TO MD ANDERSON AND WILL HAVE FIRST SURGERY NEXT WEEK. WE WILL CONTINUE THIS JOURNEY WITH FD. 

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