Can people with Gastroschisis work? What kind of work can they perform?

Most individuals born with Gastroschisis lead healthy, productive lives and face no long-term limitations on their ability to work. Because Gastroschisis is a congenital abdominal wall defect corrected shortly after birth, the vast majority of survivors grow up to pursue any career path they choose without requiring specific occupational modifications.

Can adults born with Gastroschisis work?

Yes, people born with Gastroschisis are typically fully capable of performing any job, from physically demanding roles to sedentary office positions. Since the condition is treated in infancy, most adults have no ongoing physical restrictions. Success in the workforce is determined by an individual's personal interests and education rather than the history of their Gastroschisis.

Are there specific workplace accommodations for this condition?

While most individuals with a history of Gastroschisis do not require accommodations, some may experience long-term complications related to bowel function, such as periodic digestive sensitivities or scarring. If these rare issues arise, common accommodations include:

• Access to private, accessible restroom facilities.


• Flexible break schedules to manage digestive health or hydration needs.


• Ergonomic workstations for those who may have residual abdominal discomfort.


• Remote work options during periods of gastrointestinal flare-ups.

How should I approach my employer about my health history?

In many regions, you are not legally required to disclose a history of Gastroschisis to an employer unless you are requesting a specific accommodation. If you choose to discuss it, frame the conversation around your current health needs rather than the childhood diagnosis. Focus on your strengths and your ability to perform your essential job functions effectively.

What is the professional outlook for those in the community?

Our DiseaseMaps.org community includes 196 people with Gastroschisis, many of whom are thriving in diverse professional fields including healthcare, engineering, and the arts. These stories demonstrate that a Gastroschisis diagnosis at birth is a starting point, not a barrier to a successful career.

Next steps

• Connect with others on DiseaseMaps.org to share career experiences with the Gastroschisis community.


• Consult a gastroenterologist if you have lingering digestive questions before starting a new job.


• Research your local labor laws regarding disability disclosure and workplace rights.

Medical disclaimer: This content is for informational purposes only and does not constitute professional medical advice, diagnosis, or treatment.

References

• NIH Genetic and Rare Diseases Information Center (GARD): Gastroschisis


• Orphanet: Gastroschisis


• March of Dimes: Understanding Gastroschisis


• APSAC (American Pediatric Surgical Association) Patient Education