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Which advice would you give to someone who has just been diagnosed with Gestational trophoblastic disease?

See some advice from people with experience in Gestational trophoblastic disease to people who have just been diagnosed with Gestational trophoblastic disease

Gestational trophoblastic disease advice
9 answers
Make sure you ask your health team lots of question. Be your own health advocate. Know that you will get through this and that you are strong.

Posted Mar 7, 2017 by Tiffany 400
Find someone that can listen to your problem. Crying if you have too.. It can release your stress. Find supporting group that can help and support you with their experience. Always positive. Never think that you are alone.

Posted Mar 8, 2017 by Hazwani 1050
Stick with monitoring and follow ups; very important. Ask questions, seek 2nd or 3rd opinions and take one step at a time.

Posted Sep 26, 2017 by Cindy 2120
Take your time and it's okay to cry and be angry

Posted Oct 7, 2017 by Jessica 900
Ask lots of questions about the disease and the treatment offered. You can say no and you can get a second opinion (not that I needed one) I worked with my oncology team in all the decisions.

Posted Oct 8, 2017 by Melody 2263
Ask questions of your medical team, make sure you have a full understanding of what is going on. Seek out others who may have similar experiences, don’t be afraid to seek counseling.

Posted Nov 6, 2017 by MCHill 3050
Translated from portuguese Improve translation
Search for a centre of reference as soon as possible!

Posted Oct 18, 2017 by Luciene Scarabelli 1000
Translated from portuguese Improve translation
The beginning is the most difficult, we think that you will never have an end, but with the passing of time, things will be calming down and improving

Posted Oct 18, 2017 by Hemille 1000
Translated from portuguese Improve translation
discovering the disease, the most important thing is to seek help in a center of reference of the disease. so, you have all the necessary follow-up to the cure. do the follow-up beta hcg until the high is essential.

Posted Oct 18, 2017 by Meire 1000

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World map of Gestational trophoblastic disease

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Stories of Gestational trophoblastic disease

GESTATIONAL TROPHOBLASTIC DISEASE STORIES
Gestational trophoblastic disease stories
https://www.facebook.com/sarah.arends.0927/posts/10153842187923073
Gestational trophoblastic disease stories
October 2014 I was "pregnant" . My hcg was not co corresponding to my weeks of pregnancy and I started to bleed . I was referred to have a scan but nothing could be made out so it was decided to be done again in 2 weeks. 2 weeks passed and the scan w...
Gestational trophoblastic disease stories
Had a tumor in my uterus that was a pound and a half in size. Diagnosed 03-04-13, hysterectomy 03-05-13. HCG's were well above 400K when they stopped counting. Monitored hcg levels for one year. Last check they were 2. 
Gestational trophoblastic disease stories
My baby was born full term and I wasn't diagnosed until she was 4 months old and after 12 hours of tests and misdiagnosis of a miscarriage,  a heavy menstrual cycle or another pregnancy. After I had a massive hemorrhage, one dr ordered a stat bhcg l...
Gestational trophoblastic disease stories
Hello, my name is Kayla. I am 23 engaged and have a beautiful little girl. I had Ebony January 14 2013. In June of 2014 I had my first molar pregnancy. I was not pregnant. They removed the molar. I have been on birth control since my daughter was bor...

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