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What is the life expectancy of someone with Glycogen Storage Disease?
Life expectancy with Glycogen Storage Disease: what research and real patients say, recent advances, and a medically reviewed summary with sources.
For type 3, I'm not sure. I was told I would be dead before the age of 40. Even my specialist is amazed that I am still alive and I am doing amazing!! This disease is different in everyone so there is no telling!
Posted Mar 1, 2017 by Shelly 1000
can i stop myopathy and osteopathy due to glycogen disease?
how to stop my disease?where can i be treated?sorry if you wrote a question in the wrong place. I don't know English well and use a translator
how to stop my disease?where can i be treated?sorry if you wrote a question in the wrong place. I don't know English well and use a translator
Posted Aug 1, 2021 by Ksenya 2200
The oldest person with gsd described in the medical literature was 69 years old. I’m 63 years old and plan to beat that. Katherine
Posted Jan 12, 2023 by Kat 100
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I don't know edperanza of life because it depends, among other causes of the type. They are doing clinical trials
Posted Mar 11, 2017 by Pepa 1000
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The childhood form of the disease is the most serious. Prior to ERT , life expectancy was not going beyond the 4-5 years of life.
The adult form is more insidious, but the TRE has greatly improved the expectancy and quality of life. Especially with the good response of the respiratory pattern.
The use of BIPAP is critical in these patients
The adult form is more insidious, but the TRE has greatly improved the expectancy and quality of life. Especially with the good response of the respiratory pattern.
The use of BIPAP is critical in these patients
Translated from portuguese
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Development of enzymes that facilitate the absorption lisossomal or carreadores
Posted Sep 24, 2017 by Welton Correia Alves 1000
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In children the expectation of life is a little bit smaller, but in adults the disease affects the quality of life. Today they have a good life expectancy. Scientists are developing enzymes.
Posted Oct 14, 2017 by Jakeline Serafim Vieira 1010
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The life expectancy of a patient with glycogen storage disease can be lower than that of a person with good health or not, it all depends on the quality of life that you take
Posted Nov 16, 2017 by Agus 800
