A Gift and a responsibility From God

Mar 16, 2018

By: Paul

Year Condition Began: 2015

GM1 Gangliosidosis

Error

LL began to regress at age 18 months. An exact date may be impossible to know. pretty normal 18 month old girl, then slowly no talking, no more walking, stopped feeding herself, no crawling, arm movement is only waves and some uncontrolled movement. legs stiffening, flexing feet, by two years solid foods are a choking hazard. At 30 months some aspirating while drinking liquids. at 35 months G-Tube installed. We want to make her life comfortable while looking for answers in nutrition.