Advice of Goldenhar Syndrome

Being a board member of Patient Charity called Laposa.

by Petra Poulissen

i wear hearing aids to help me hear..

by chloe jade

Getting our son any and all forms of therapies, services, and teachers have improved his developmental delays.

by Kris, mother of 4 year old son with Goldenhar Syndrome

Football

by Martin.smith

Pintar es una de las actividades mas importantes para mi proceso de sanación interna

by María Guadalupe

Founding out something new going with my daughter with her Goldenhar Syndrome

by Judy

Founding out something new going with my daughter with her Goldenhar Syndrome

by Judy

APAP/CPAP Therapy for moderately severe Sleep Apnea. ❤

by Cynthia Murphy- Craniofacial Awareness Advocate

Jai eu une belle enfance

by Aminata

Having a great partner

by Petra Poulissen

my parents help me alot..especially when im sad

by chloe jade

We are thankful to have such strong support from our family.

by Kris, mother of 4 year old son with Goldenhar Syndrome

Mis padres y mi novio.

by María Guadalupe

I feel like I lost for her everyday

by Judy

I feel like I lost for her everyday

by Judy

Meeting others within the craniofacial community who I can relate to in more ways than one. ❤

by Cynthia Murphy- Craniofacial Awareness Advocate

Je me comporte en peu comme tout le monde

by Aminata

Having a Family doctor who's helping at anytime

by Petra Poulissen

i like reading..but have limited vision

by chloe jade

Would love to connect with other families that share a similar journey.

by Kris, mother of 4 year old son with Goldenhar Syndrome

Hacer deporte constantemente

by María Guadalupe

Looking forward to founding friends for my daughter and me to able to relate to about whats going on with her

by Judy

Looking forward to founding friends for my daughter and me to able to relate to about whats going on with her

by Judy

Advocating for the cause of craniofacial differences and involving EVERYONE in these efforts. We must raise awareness and enact change TOGETHER! ❤

by Cynthia Murphy- Craniofacial Awareness Advocate

Je vais a une école secondaire normale

by Aminata