Goldenhar Syndrome description. Find out what Goldenhar Syndrome is and know more about it.

▷ What is Goldenhar Syndrome

Stories of Goldenhar Syndrome

GOLDENHAR SYNDROME STORIES

VIEWS

BY

I was born with GHS in 1971, but was not diagnosed until nine years later. I was born with a dermoid tumor on my right eye, ear tags on my right ear and a cats eye in my right eye. I had surgery to remove my dermoid when I was 9 years old.

597

4/16/16, 8:09 AM by Cathy

MY CHILD

My 14 year old son is the one with goldenhar syndrome. He's had 2 reconstructive surgeries to make him an ear. He's got to have pallet repair then when he's 18 he will have jaw surgery.

573

12/26/15, 3:54 PM by Brandy

DARLING DAUGHTER

my daughter with her twin brother was in born 2014. She was diagnosed within days of her birth. She is a incredible fighter and has a contagious smile that lights up a room.

487

2/12/17, 12:58 AM by Sjo1970

RESEARCH OPPORTUNITY!

Research Opportunity! The CARE Team at Seattle Children’s (Seattle, WA, USA) and the University of the West of England (Bristol, UK) are recruiting individuals and caregivers of children diagnosed with Goldenhar syndrome. We want to understand your...

What is Goldenhar Syndrome